AAN 2022 | Measuring ambulatory neurologic health disparities with the Axon Registry

Richard T Benson, MD, PhD, National Institute of Neurological Disorders and Stroke, Bethesda, MD, discusses a study examining potential racial and ethnic disparities in ambulatory neurology quality measures within the Axon Registry project. The Axon Registry is a neurology-specific patient registry that collects, reports, and analyzes real-world data from practices across the US. The study found a large number of missing or unknown racial and ethnic data and that data collection was performed incorrectly – making it difficult to look for inequities. Once these issues are addressed, the Axon Registry can correctly look at how neurology is practiced. This interview took place at the American Academy of Neurology 2022 Congress in Seattle, WA.