So motor neuron disease is a devastating condition. It robs people of their ability to walk, talk and eventually swallow and breathe. It’s devastating for both the people that actually have the condition, but for those around them that love and support them. MND Scotland is committed to supporting the community affected by MND in Scotland and we do that by personalizing the services that we provide to them...
So motor neuron disease is a devastating condition. It robs people of their ability to walk, talk and eventually swallow and breathe. It’s devastating for both the people that actually have the condition, but for those around them that love and support them. MND Scotland is committed to supporting the community affected by MND in Scotland and we do that by personalizing the services that we provide to them. So we have a group of people who will help sufferers apply for the benefits which they’re owed and should be receiving from the government, help them navigate systems to make sure that they get the housing adaptations that they need. The timescale of the condition is very short. Most people die within about 18 months of receiving a diagnosis of MND. So it’s really, really important that in that time that they get the support that they need. So one of our priorities is to ensure that that happens for as many people as we can help.
We’re also absolutely committed to finding treatments for MND. The only way forward really is to find ways of preventing and treating the condition. And over the 40 years that the organization has existed, we’ve invested in research to find new treatments and we will continue to invest in innovative research to try and not just improve treatments but improve care as well as eventually find a cure.
The other areas that we are really prioritizing are campaigning, campaigning to make sure that there is a better world for people who have MND that they are better supported, that the authorities and the governments and the councils listen to what people need and actually do something about providing it. So these are some of our priorities for our strategy making time count because people with MND do not have time.
